Referrals to pulmonary rehabilitation (PR) and palliative care (PC) services for patients with idiopathic pulmonary fibrosis (IPF) in England remain significantly lower than for other respiratory conditions, despite evidence of their benefits. A study using data from over 17,000 patients diagnosed with IPF between 2010 and 2019 revealed that only 12% were referred to PR and 19.4% to PC services. Male sex, smoking history, and a COPD diagnosis were strongly associated with PR referrals, while factors like older age, co-existing dementia, and ischemic heart disease were linked to lower referral rates. Over time, referrals increased modestly, but women and Black patients were disproportionately under-referred.
The study highlighted the critical gaps in care, particularly the late timing of PC referrals, with most occurring within six months of death. The authors emphasized the need for significant investment in PR and PC services to address the unmet demand and improve the quality of life for patients with IPF. They stressed the importance of equitable and early access to these services, aligning with current guidelines advocating a holistic approach to IPF management.
Reference: McCormick B. Low Pulmonary Rehabilitation, Palliative Care Referrals for Patients With IPF Persist. AJMC. Published October 30, 2024. Accessed November 13, 2024. https://www.ajmc.com/view/low-pulmonary-rehabilitation-palliative-care-referrals-for-patients-with-ipf-persist
