Chronic obstructive pulmonary disease (COPD) is a leading cause of global morbidity and mortality, affecting over 212 million people and causing 3.3 million deaths annually. Despite its incurable nature, COPD significantly impacts patients’ quality of life and burdens caregivers. Researchers of this study evaluated a nurse-led supportive care model embedded within a COPD outpatient service, focusing on patient and caregiver perspectives. The model aimed to address barriers in integrating palliative care by emphasizing symptom management, advance care planning (ACP), and holistic support tailored to patient needs, regardless of prognosis.
Findings highlighted the value of continuity, trust, and expert guidance provided by the multidisciplinary team, with home visits being particularly appreciated for reducing the challenges of accessing care. Patients and caregivers emphasized the importance of caring relationships, clear communication, and timely ACP discussions facilitated by trusted nurses. Participants noted improved symptom management, reduced caregiver stress, and increased confidence in navigating end-of-life planning. The study underscores the potential of nurse-led supportive care to enhance patient and caregiver experiences, suggesting its broader applicability to other chronic, life-limiting diseases.
Reference: Ora L, Wilkes L, Mannix J, Gregory L, Luck L. “You don’t want to know just about my lungs, you…want to know more about me”. Patients and their caregivers’ evaluation of a nurse-led COPD supportive care service. J Clin Nurs. 2024;33(5):1896-1905. doi: 10.1111/jocn.17008.
